KEY PLAYERS

by | Feb 10, 2017 | KEY PLAYERS | 4 comments

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4 Comments

  1. E Gibson

    I’ve been telling my internist for three years that I have a brain tumor. It’s the only way I knew how to describe the pain in my head. Me did an MRI and eventually an MRI/MRA and told me , “No brain tumor.” After that, every time I brought it up, he rolled his eyes at me. Fast forward three years later, a fantastic neurologist, and a spinal tap and I find out that I’m overproducing spinal fluid like crazy and that according to my neurologist, “It feels exactly like you have a brain tumor, there’s just no physical tumor present.” So yes! Please listen. We are not crazy.

    Reply
  2. Alexandra

    Having Lupus makes you a `high-risk` patient, so any new symptom should be taken seriously. I would never dismiss a patient with an autoimmune disease on immunosuppressant drugs.

    With regard to the `rest`of the people, i think that taking patients´ concerns seriously is benefiting both the doctor and the patient. A patient who doesn´t feel listened to / is being dismissed without some solid medical ground, will become more worried, stressed, loose confidence in its own judgement, have others in the family consider him/her as hypochondriac, look for other doctors and so on.

    Having a chronic disease can certainly give you the empathy that other `doctors`might not have, but one must not loose that fine medical objectivity that is attained after some years of practice which helps discern the real medical problems from more `soul`-like problems ( which are not to say unreal, but demand another type of `treatment`).

    Seems like you have found a job in the end. Hope is meeting your `demands`.

    A.

    Reply
    • Deanna Barker

      For the doc…. my daughter was just diagnosed with systemic….
      She is graduating HS her plans were to become a surgeon but she is backing off now that she has Lupus. Do you think it would be hard going to med school and becoming a doctor is not physician maybe a bio medical engineer

      Reply
      • thepatientdoc

        Medical school is hard even without lupus.But it’s not impossible. It is a huge financial commitment so once you start it is hard to get out. If that is her only passion I wouldn’t discourage her, but support her and help her be realistic. If she has other equal passions that may be easier than I would look into those.

        Reply

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